Sunday evening

Well, Emma Kate seems to be doing great! She has been very active and talking lately, playing and laughing hard! She had a visit from PT today and was standing up playing with toys on a chair, she needed help with balance, but otherwise was standing very strong on her own. She also was evaluated by the speech pathologist and was given the go-ahead for purees and honey thick liquids again, so we'll keep making progress on her eating hopefully. She did get a new feeding tube placed NJ today, and she was a total champ for it! Everyone there said time and again that she was pretty much the best patient they had ever had back there! She did so well. We had a lot of fun tonight and I started to wonder if we were making too much noise in the PICU... luckily our nurse said that you can't really hear anything outside the room... :) She's off the oxygen completely now, and they've started feeds back as well as moved on with her drug taper. I think we've finally gotten down enough on the drugs that the real Emma Kate is coming through again!! It's a wonderful thing to see! :D