A few successes

So we got the intubation tube removed yesterday around 11:00 am and today we are still doing ok. She is a noisy breather and has desaturated for short periods of time while crying (usually less than 20 seconds) and recovers on her own. The first few times, we did supplemental blow-by to assist just in case but after awhile, we discovered she didn't need it. Today, she got a feeding tube placed in her jejunum which is past where the other tube was so hopefully she won't have vomiting problems again. She should be getting her IJ line removed today when a doctor is available. She did fairly well overnight sleeping for an hour or two and then being awake for an hour. She was pretty quiet when she woke up just looking at daddy. One time she had a good dream and laughed out loud. She also has bad dreams where she cries quietly and unfortunately desaturates. She is sitting up in bed right now putting her blood pressure cuff on mommies arm and playing some toys on her bed. Gretta is getting loving from Aunt Stephanie and Uncle Ryan in the Ronald McDonald House across the street. Daddy just met with the crew working today at Station 19 in Cincinnati and will try and slip over for dinner with them tonight. Roanoke County Local 3194 representatives came up yesterday and visited for awhile with our family. It was nice to see familiar faces again. We appreciate all of the support. Please know that we will try and express our thanks when we see everyone next but it will not come close to how we have been touched by all of the thoughts and help.