Wednesday evening

Emma Kate has had a decent day today, stable for the most part. A few times she dropped her O2 concentration for unknown reasons... each time she recovered with a few breaths of higher O2. She is being turned regularly and seems to have a small area of irritation developing on the back of her head- we're watching it carefully and hope it doesn't turn into anything significant. She's sometimes not tolerating being turned to the right although most times she tolerates the left just fine. For some unknown reason her right hand seems to be slightly puffy again... another thing we can't quite figure out! She got her abdomen examined with the ultrasound today and she didn't have any significant fluid there, so they're thinking of pulling the abdominal drain if she continues to have no output from it. We just don't want to jump the gun on it again. Her ENT doctor came to scope her again this afternoon and felt like things looked as good as they did yesterday and he did another steroid treatment on her. She did one more weird thing today, (we seem to have a lot of those weird things with this girl) where she got sweaty just on her head for a little while. Nothing else was sweaty, and she wasn't running a fever when it was noted, so we don't know for sure what it means. She's done it twice now- once today and once last night. If she does it again, they'll pull cultures to run for infection. She's still getting some pretty powerful antibiotics though, so hopefully there's nothing serious going on.

The plan for now is to check her at some point tomorrow while she is breathing on her own with ventilator assistance, and see how her repair area works with dynamic pressures. How she does with that will largely determine our course for the future. I'm sure it will be a restless night for all of us, anxious to know what is going to happen.