Sunday evening

Well, Emma Kate has done great for over 48 hours now- all her numbers have been perfect and she's only needed her ET suctioned a few times. She's had to be on increasing doses of sedatives and paralytic meds due to developing tolerance, but as long as it works we're good. She's only required boluses of meds a couple times through today, otherwise it has been very smooth. She's got her intestines working again- she had a big poop yesterday evening and a few smaller ones through the day- this is excellent progress, but honestly the process of changing her diaper freaks me out- it moves her just enough to shift her on the bed and the ET always looks just slightly different each time- it's IMPOSSIBLE not to move her at all. It's agonizing. She's looking great, the distal edema really has reduced significantly, and her face is looking better and better.

Right now the plan is to *possibly* repeat the bronchoscopy tomorrow morning around 10am, and assess healing as well as look for that little flap of tissue. If it ends up being a little granuloma, hopefully they can remove it and laser it so it won't bleed. We're really anxious to know where we stand and what the game plan is for the future. It's possible that the scoping might be put off until mid week, depending on how the surgeons feel about her current situation. We're loving the fact that she's been so stable, but we're also just biting our fingernails worrying about how long this stability is going to last.